Database/DBSR (HICCC)

Overview of Services

The central function of the DBSR is to:

1. Provide oversight and infrastructure for the development and maintenance of cancer-related clinical databases and biobanks for collection of data and biospecimens
2. Enable linkage to clinical data and tumor registry data through a secure portal
3. To procure and maintain a repository of human biological samples, clinical data and epidemiologic data for distribution to investigators, while also protecting the confidentiality of individuals donating to the repository in the course of their medical care and/or research participation
4. To support and facilitate cancer research in the context of IRB and HIPAA regulations by articulating and implementing criteria allowing the acquisition, storage and distribution for research use of such data and specimens with or without linkage to personal health identifiers

Existing clinical databases and biobanks at the Cancer Center:

1. Bone Marrow Transplant
2. Neuro-Oncology
3. High Risk Breast Registry
4. Breast Cancer
5. Community Outreach (RRMO)
6. Esophageal Cancer
7. Genitourinary Cancer
8. Liver Cancer
9. Lymphoma
10. Myelodysplastic Syndrome/Acute Myeloid Leukemia
11. Pancreatic Cancer
12. Pediatric Cancer
13. Radiation Oncology
14. Thoracic Oncology
15. Tumor Bank

Leadership

Katherine Crew, M.D., M.S., Director
Jeanine Genkinger, Ph.D., Co-Director

Links and Resources

Database Shared Resource

Cancer Questionnaire Links

• http://www.facit.org/FACITOrg/Questionnaires
• http://azcc.arizona.edu/research/shared-services/bmss/questionnaires
• http://groups.eortc.be/qol/
• http://dceg.cancer.gov/tools/design/questionnaires
• http://tinyurl.com/kkrhmqo

Contacts